The Palgrave Handbook of Disabled Childrens Childhood Studies [Hardcover]

Disabled childrens lives have often been discussed through medical concepts of disability rather than concepts of childhood. Western understandings of childhood have defined disabled children against child development norms and have provided the rationale for segregated or special welfare and education provision. In contrast, disabled childrens childhood studies begins with the view that studies of childrens impairment are not studies of their childhoods.  Disabled childrens childhood studies demands ethical research practices that position disabled children and young people at the centre of the inquiry outside of the shadow of perceived norms.

The Palgrave Handbook of Disabled Childrens Childhood Studies will be of interest to students and scholars across a range of disciplines, as well as practitioners in health, education, social work and youth work.

Introduction; Katherine Runswick-Cole, Tillie Curran and Kirsty Liddiard.- Part 1:  Experience and Building Understandings.- 1. The Texting Project; Blair Manns and Sarah Manns.- 2. The Tree of Participation: our thoughts about growing a culture of participation between young people, parents and health team staff; Jennifer McElwee, David Cox, Tony Cox, Rosemary Holland, Thomas Holland, Theresa Mason, Chloe Pearce, Caroline Sobey, Julie Bugler, Andy James and Beverley Pearce.- 3. What can I say?; Wendy Merchant and Jamie Merchant.- 4. The Heaviest Burdens and Lifes Most Intense Fulfilment: a retrospective and re-understanding of my experiences with childhood liver disease and transplantation; Sophie Savage.- 5. My Sister, My World: from second Mum to Nurse; Rebecca Whitehead.- 6. Being a Disabled Woman and Mum: my journey from childhood; Jo Skitteral.- 7. Going off grid: A mothers account of refusing disability; Kim Davies.- Part 2: Research Studies.- Part 2.1: Research Involving Disabled Children and Young People.- 8. The socilÅ